Renowned hematologists, lawyers, journalists, jurists, health specialists, scientists and other members of the civil society on Thursday expressed concern on the growing ratio of thalassaemia in the country and demanded for mandatory premarital test for thalassaemia and implementation of the law made in this regard.
They also demanded that a Central Thalassaemia Registry and Central Blood bank should be established, and the government and civil society should play their role to make Pakistan a Thalassaemia-free country.
This was expressed by speakers in a Seminar on “Modern era of Thalassaemia Prevention and Management & Role of Civil Society, Media in Thalassaemia Prevention” here in Bahria Auditorium, organized by Omair Sana Foundation.
The Seminar was presided over by Naval Commandant Karachi Arif Ullah Hussain. Ex-City Nazim Karachi Naimatullah Khan, Dr Tahir Shamsi, Saqib Hussain Ansari, Haji Hanif Tayyab, Ansar Burni, Muhammad Shariq, Anique Ahmed, Syed Shaukat Ali, Ali Mohsin, Saba Hassan, Shabaz Islam, Shoaib Mohammad, Obaid Hashmi and others addressed the seminar.
A large number of students of various universities, medical colleges, instructions, thalassaemia children, parents and other members of the civil society participated in this seminar.
They appreciated Omair Sana Foundation for their tireless efforts for eradication of thalassaemia from the society. They considered the new research of Dr Saqib Hussain Ansari as a positive development in the roadmap of Thalassaemia management.
The role of media and civil society cannot be ignored and if they continued to actively contribute thalassaemia could be eradicated from Pakistan, they said, adding the government should establish network of screening centers all over Pakistan and seriously adopt measures to implement the strategies to make the dream of a thalassaemia-free Pakistan come true.
The speakers said that we want to form a new Pakistan but we still are lagging behind to give protection to our children especially thalassaemic children.